Each child who is DeafBlind faces a unique set of circumstances for which their family learns to navigate. This initiative empowers families with the resources and tools needed so they can advocate on the behalf of their child.
Resources to support family engagement:
- NCDB Families Matter!- Stories with videos and resources of children and young adults who are DeafBlind and their families.
- Montana Parent Partner Program- Parent Partners serve as the “hub” in primary care practices for coordination of health services and family support, and to ensure that all available services are fully integrated.
- National Family Association for DeafBlind– The largest non-profit serving families of children who are DeafBlind. NFADB helps empower families and advocate their unique needs through providing community and Parent Education.
- The CHARGE Syndrome Foundation Family Support Groups
- Family-to-Family Support- connect with us to learn more about ways families can connect with one another.
- Montana Empowerment Center, Inc. – Parent Training Information Centers serve families of children with disabilities who are ages birth through 26 by providing online resources and individualized assistance to help parents and educators.
- Montana Family to Family Health Information Center – University Of Montana – amplifies the strength of families of children and youth with health care challenges by forging relationships with providers and programs, connecting families to meaningful supports, and providing them opportunities to learn and to share their experience.